Rare Disease Day

Rare Disease Day aims to raise awareness about rare diseases and their impact on patients’ lives. This initiative takes place every year on the last day of February and is organized by Rare Diseases Europe (EURORDIS) – an alliance of 917 rare disease patient associations.

CNC has been celebrating this day in collaboration with the Portuguese Association for Hereditary Ataxias (APAHE), welcoming patients, relatives, care givers and the general public in CNC to attend lectures, talk with researchers and doctors and visit the labs.